Surveys

Please note that COPD Support Ireland is in no way endorsing any of these surveys / studies. We are merely making them available to view and each individual can decide themselves if they wish to participate in any study or survey. If you are interested in participating in any of these then please contact the organisation / individual undertaking the study / survey directly.


Living with COPD in the community during the Covid-19 pandemic: an exploration of patients’ perspectives.

16/06/22

Researchers from Trinity College Dublin and associated healthcare providers wish to interview people who are living with COPD and their experiences of living at home in the community during the Covid-19 pandemic. 

The study involves taking part in a 30-to-45-minute telephone interview with a member of the research team. Your interview responses will be anonymised and kept strictly confidential.

 Inclusion criteria:

  • People aged over 18 years of age
  • Diagnosed with COPD for at least 18 months or more before the date of the interview.
  • Living at home in the community during the Covid-19 pandemic
  • Able to speak English (because it is not possible to facilitate an interpreter)

This study has received ethical approval from the TCD Faculty of Health Sciences Ethics Committee on 09th June 2022. COPD Support Ireland are supporting this study.

What should I do if I would like to participate?

Go to https://www.tcd.ie/tcphi/research-collaboration/copd-study/index.php or contact Dr Éadaoin Butler by email (BUTLERAD@tcd.ie) to discuss the study and be sent a copy of the Participant Information Leaflet.


Physical Activity Study – Lorraine Tompkins TCD

14/06/22

Physical activity is critically important for the prevention and management of chronic conditions.  As older adults age, physical activity levels tend to decrease, and time spent in sedentary behaviour tends to increase.  The importance of understanding what influences physical activity behaviour is key to modifying behaviour and to promoting physical activity. Improving motivation for physical activity is important for increasing physical activity among people who are physically inactive or spend a vast amount of time sedentary.  This study is taking place to explore older adults motivation to be physically active, who they are physically active with or alone and where they are physically active such as indoors or outdoors to help understand their physical activity behaviour.  The study also aims to understand the best time of day to be physically active.  Older adults with two or more chronic conditions (diabetes, cardiovascular disease and/or respiratory disease) may sometimes find it difficult to be physically active and may not feel motivated to do some type of physical activity.   Collecting your data in real time will give a better understanding of what influences your physical activity behaviour. This study aims to use an activity tracker ActivPAL and electronic questionnaire via application using your android smartphone to understand older adults with two or more chronic conditions physical activity behaviour.  To the best of my knowledge this type of research has not been conducted in Ireland or with older adults with multiple chronic conditions.

 

For further information on the study please contact Lorraine Tompkins directly on tompkilo@tcd.ie or phone: 085 2839762


Participants’ views on online exercise classes during the Covid-19 Pandemic

26/05/22

You are invited to take part in a research study that aims to determine the views of Irish Physiotherapists and patients towards physiotherapy-led online exercise classes. This survey is being undertaken by Eimear Cronin, a senior Physiotherapist at St. John’s Hospital in Sligo and a PhD candidate at Atlantic Technological University, Sligo under the supervision of Dr Ken Monaghan.

If you are an adult who has participated in a physiotherapy-led online exercise class and is interested in taking part in this study, would you kindly click on this link to complete an anonymous survey:

https://qfreeaccountssjc1.az1.qualtrics.com/jfe/form/SV_5tXPGL3Zevn1lSS

This survey will take only 5 minutes to complete.

Should you have any questions or would like more information in relation to this study, please feel free to contact Eimear at eimearpcronin@gmail.com


Understanding unmet needs today and in the future for strategic development guidance, respiratory patient perspective

26/01/22

EFA – European Federation of Allergy and Airways Diseases Patients’ Associations in association with one of their corporate partners, Roche, is  doing some research and they are interested  in interviewing patient leaders on future unmet needs on asthma / COPD / respiratory (depending on your expertise) especially when it comes to treatments.  The study is described below:

In the interviews we are planning to run in the next several days, we are looking for candidates who could help us understand how future patient unmet needs will evolve over the next 5-10 years, especially thinking about patients’ expectations from drugs or how they want to live their lives better. More specifically, we are planning to ask a number of questions with the key themes below:

  • Unmet needs for asthma/COPD Patients now and in 2030
  • Ideal therapeutic & non-therapeutic solutions from the patients’ perspective to address remaining unmet needs
  • Challenges in addressing asthma/COPD Patients unmet needs
  • How Patient – HCP communications influence treatment decisions – what works, what needs to change, what needs to be started?

This will in the end help us identify the areas where Roche can best serve the needs of respiratory patients in the future.

We are currently partnering with a company called Adeptfield to run the interviews. Their project director, @Deepa Patel (+44 20 3432 8216, deepa.patel@adeptfield.com), will soon reach out to you directly. Ideally we would love to run the interviews before the end of next week but we would love to hear your availability as well.

They offer a honorarium of 220 for the person interviewed, and a donation for the organisation of same amount if appropriate. The interview will be in English.

If you are interested please contact the project director Deepa Patel directly on deepa.patel@adeptfield.com


A request from the School of Medicine in NUIG for people living with Conditions such as COPD to speak with their students in a new teaching initiative

05/01/22

The School of Medicine in NUIG are seeking people living with chronic conditions such as COPD, to speak to their students (virtually via Zoom) about their experience of living with COPD day -to -day and also to speak to their experiences of being admitted to hospital due to their condition (if this has ever happened for them). We believe and train our students to keep patients at the centre of their minds, and the centre of any care decisions so ensuring the voices of those living with chronic conditions is included in their learning is very important.

We have completed some similar work in the last 6 months with participants associated with other charities/community groups and the feedback has been very positive. Please note any individuals that would like to get involved, would be re-imbursed for their time as we recognise that their time and input is valuable.  Ideally we are seeking somebody living with COPD who has required at least 1 hospital admission due to an acute deterioration of their condition e.g., infection, perhaps someone who has engaged with pulmonary rehab/physio programme or who uses home oxygen.

The initiative is purely for online interaction via Zoom so there would be no need to attend NUIG face to face, especially in light of the current national COVID19 situation.

If you are interested in participating please contact directly:

 

Dr. Jennifer Yates, MRCPCH

LAB in Professional Development

School of Medicine, NUIG

E-mail: jennifer.yates@nuigalway.ie